I am little Kassia father. Kassia was born with a rare disease that the only way that it is possible to get is if both parents carry the same gene. Panconi Anemia which can cause blood disorders bone marrow problems and can cause cancer. It also causes physical abnormalities. Little Kassia has physical abnormalities to her arms. She has had numerous surgeries. She is just starting to recover from her last surgery. I don’t want to name all the problems she has had but please look up Faconi Anemia to see what all it can cause. Kassia has had a lot of the problems listed. We have been at the hospital every day. It has been very hard on our family. The hospital where she’s at is an hour away. Any help you can spare would greatly be appreciated.
thank you.
