Hello, my name is Warren Norton. I am 26 years old. I was born with an unknown variation of Connective Tissue Disease. When I was around 11 years old, the genetics doctor said it would probably turn into Ehlers-Danlos Syndrome. It’s been a very long time since I’ve gone in for testing, but I’m feeling the effects of it throughout my body.
I’m struggling to keep jobs when they won’t accommodate me for my body without seeing a genetics doctor for a proper diagnosis. I also can never stick around long enough to get the insurance benefits because my body can’t keep up. It is very difficult for me to find a proper job or any job in general. I can no longer afford any of my bills and I’m trying to also take care of my mother who is currently losing her job to her body fighting her constantly. I’m just trying to get by, but working paycheck to paycheck and never getting an opportunity to go see a doctor without going into some sort of extreme debt has been affecting my entire working and adult life.
