This has all been going on for about a year now. We moved from Oklahoma to Missouri, and I started having episodes where I’d black out and have mini seizures. I thought it was due to some kind of trauma to my nervous system that triggered it. I started having heart trouble, not really sure what it was either, but I was pretty persistent about finding out what was wrong with me. I did a couple of studies with my brain and my heart. The only thing they could find was heart palpitations, and they put me on medication for it in November 2024, while at the same time fighting an infection in my bladder every month, taking antibiotics, and making countless trips to the ER at Cox to be mistreated over and over. They didn’t test my thyroid like they said they did.
(Late ’24, early ’25, I finally started going to Mercy in Springfield, Missouri, to get answers.)
In January 2025,
I then noticed a weird feeling in my throat, like a knot, and it was uncomfortable. I knew it was there, just a gut feeling, but didn’t know what to do. I told doctors about it for months. They tried to say it was my thyroid and wanted to test me. I got tested by 3 different doctors. Finally, my gut doctor in Springfield ordered tests. No thyroid issues, no alpha-gal, no autoimmune disease, no allergies that they could find.
I then proceeded to beg doctors in Branson to please help me. I’m scared and I don’t know what to do. They mostly told me I was fine, would look me straight in the face, and tell me my throat was fine and the swelling was going down.
I told them they were crazy, and I’m blown away they refused to help me. I never went back to Cox because of this.
During these situations, I proceeded to get a CT scan that showed nothing from what they told me. I begged for an ultrasound. Finally, my primary physician ordered it. Of course, they see my knots, they see my throat swollen, and my lymph nodes are huge. They see my goiter, big and inflamed.
I then begged for a scope so they can see actually inside my body, down my throat, and hopefully pinpoint what is going on. I’ve contacted the infectious disease doctors on my own.
My primary care doctor won’t send me there until I get results as to maybe what’s going on. I’m trying to do my best. I’m worn out and stressed. My poor husband, I can’t imagine how he feels, and he’s been by my side for each and everything. It’s affected everyday life. His job and activities are limited, and the smallest things are hard for me to do.
Swallowing and eating certain things is difficult.
I’ve Googled everything under the sun to figure out what is going on.
My mind’s going crazy. Sometimes I go to the worst things because not knowing is eating me.
I lost a bunch of weight in the beginning, but I started forcing myself to eat.
Right now, I’m bloated and swollen.
My veins hurt, and so do my muscles. Not sure really why, but they do. Doctors try to tell me I couldn’t be feeling what I am, and they don’t understand.
We’ve prayed and prayed about it. I have night sweats and sometimes can’t rest.
I can’t cry about it and can’t scream. My voice changes every day as well.
Honestly, because of the pressure in my throat pressing against my throat, it hurts. It feels like chunks in my throat. They move around and get bigger. Some parts of my neck are hard, and my skin is different now on my neck because of this. It’s thin and strange.
I have exhausted myself searching for answers, and at this point, I’m just trying to enjoy day by day, waiting for answers.
Hospital bills are piling up. We don’t have any family in Missouri and can’t make it to Oklahoma to our loved ones at this time.
“Feeling like a ticking time bomb”
