Help Colin Heal: Support His 16th Facial Surgery for Rare Condition
Hi, I’m Jessica Golding Roberts, and I’m raising funds for my incredible 10-year-old son, Colin. Colin was born with a rare vascular birthmark facial anomaly a congenital condition called hemifacialhypertrophy, — a progressive condition that causes the right side of his face to grow at a much faster rate, from birth through teenage adolescence. The rapid ever changing facial conditions affects his face every time he has a growth spurt . This impacts his facial structure, bone mass, nerves, blood vessels, and vision.
Colin has already undergone 15 surgeries since he was just 21 months old. His 16th surgery is scheduled for June 16, 2025 — and it’s part of a long road ahead that will include laser treatments, orthodontics, routine ultrasounds, and eventually maxillofacial reconstruction. Despite it all, Colin is joyful, spiritual, and wildly creative. He’s a drummer who beats on every surface in our home, a master LEGO builder, a Boy Scout, a tennis player, a Mets fan, and a budding entrepreneur who dreams of inventing compassionate products for kids like him. Your support means more than words — every donation and every share helps us move forward with care, strength, and hope.
Why We’re Fundraising: Understanding Hemifacial Hypertrophy vascular birthmarks and facial anomalies. Colin’s 16th surgery Not to mention this will be the 3rd procedure he has had in 11 months!
Colin’s upcoming surgery on June 16, 2025, will be his 16th. He has also just started orthodontic treatment, which will eventually lead into complex maxillofacial reconstruction. These interventions are not optional — they are essential to maintain his health, comfort, and future facial function.
Our world renowned team of doctors from the Vascular Birthmark Instute Stute have been treating Collin since he was six months old. Dr. Milton Waner, Dr Teresa O, and Dr. Aaron Faye
We’re raising funds to support:
• Surgical and hospital expenses one medical procedure could cost $5,000.00 up to $30,000.00
• Orthodontics and maxillofacial preparation
• Regular ultrasounds and laser treatments
• Post-op medical care and long-term planning and therapies
Your support doesn’t just fund procedures — it helps a kind, spiritual, creative boy continue to live joyfully and confidently as he grows into his future.
WHO COLIN IS:
Colin is:
– A drummer inspired by Dave Grohl, Taylor Hawkins
– A master LEGO builder
– A Boy Scout and tennis player
– A gaming fan (MrBeast, Preston)
– A Spielberg admirer who once dressed as him for school
– An 80s/90s superfan who loves Jaws and E.T.
– A kid who proudly wears suits and walks in grace
Colin is also a budding entrepreneur. He dreams of designing compassionate, comforting tools for kids who undergo consistent and ongoing medical care — inventions that help other children like him feel safer and more supported. These ideas are still in development, but his heart is already set on helping others.
OUR COMMUNITY:
This part of the medical world is real, but often under-recognized. We know families like ours are out there — doing their best with rare diagnoses and limited awareness. Sharing Colin’s story helps raise visibility, compassion, and community for all of them.
✨ As his mom, I’m passionate about getting this story out — not just for Colin, but for every child living with medical differences that deserve understanding, access, and support.
Colin is who he is because of the village that surrounds him — our family, friends, doctors, and now, you.
♂️ Be one of Colin’s heroes.
#HelpColinHeal #ColinStrong #BeOneOfColinsHeroes #RareButReal #FacesOfStrength #HemifacialHypertrophyAwareness
A Call to a Hero with a Guitar
✨ Oh — and if anyone out there knows Dave Grohl… tell him to give Colin a call!
Colin looks up to him so much — he’s a drummer, a dreamer, and a kid who’s been through more than most adults, with kindness and humor the whole way. We promise: Colin will amaze him.
Thank you for taking the time to read Colin’s story. Whether you give, share, or simply hold him in your heart — you are now part of the village that lifts him up.
Together, we can help Colin heal, grow, and shine.
With love and thanks,
The Roberts and McKenna Family
