Evan was diagnosed with Myasthenia Gravis in 2022 after moving to North Carolina for his dream job. He was eventually hospitalized for life-saving treatment when he stopped breathing and the doctors have not yet been able to stabilize him enough to work. MG is an autoimmune disease that attacks his neuromuscular system. It has affected his vision, breathing, walking and strength, as well as causing him to fatigue quickly from basic daily activities like showering. The treatment has greatly weakened his immune system and not been effective in stabilizing his disease yet. While MG is not curable, Evan CAN stabilize and eventually go into remission if we can get the right treatments.
We are currently trying to get long-term disability insurance to pay while we go through the process for Social Security Disability, or help till he can stabilize enough to return to work. Currently he has no source of income and was denied Medicaid. Every route through this catastrophe requires additional, expensive, medical testing and treatments.
We’ve exhausted our savings on his living expenses, prescriptions, testing, and treatments. Any help would be appreciated while we’re completing the next steps to get him approved for Disability. Funds will be used to cover Evan’s necessary prescriptions, required neurologist appointments, and help with his monthly living expenses (rent, groceries, and utilities only.) We have cut every expense we can and just need need to maintain his current care until Medicaid or Disability allow us the opportunity to access the care needed to get him in remission.
