Hi Im Belinda, I have a dear friend Heather who is an adorable wife and a mother of five. One of her children Matias was born with a chromosome disorder Ring14. I am also a mother of a Ring14 child and thats what brought Heather and I together.
Heather is 37 years old. Heather has been battling breast cancer for many years and she is trying to stay strong for her husband, her children, and herself , but the fight is getting harder and Heather needs her husband, Bronson near her at all times, and there needs to be extra hands at home to help with Matias special care.
I plee with you to consider making a donation to help Heather and Bronson take some of the financial stress out of their lives at this unbearable time. Help them so they can concentrate on whats really important right now and not have to worry mortgage payments, and keeping the lights on.
I took one of Heather’s Facebook post to share a little bit about Heather and her family.
Heather’s FB Post,
At my recent appointment with my oncologist, we had an eye opening conversation about my prognosis now that Leptomeningeal Disease (LMD) is in the picture instead of MBC only. I’ve had an understanding that this is a very life limiting disease but hadn’t really had the courage to straight out talk about prognosis with my team. To save me having to explain more what LMD is, I’ll say there is an abundance of info on the internet if anyone is interested. Basically, my doctor said she wasn’t sure I’d even be here today and she’s quite pleased I am. Many people with LMD survive weeks to a few months after diagnosis. The fact that I’m walking, talking, and cognitively okay are icing on the cake. My medical team is intrigued by me, and I’m the first person they’ve had on my current regimen for the LMD. I’m happy it’s working, I’m terrified it will stop. I know people will say don’t be afraid, but the nature of LMD is that things can change very quickly and someone who is doing otherwise “well” can become terminal within days to weeks. It IS scary and I AM scared. As far as prognosis, my oncologist feels I can see another Christmas, which is my biggest goal right now. She said she thinks setting six month goals is reasonable, and I can deal with that. The possible longer term prognosis I had with only MBC (5 years, 10 years maybe) is pretty much out of the window. It simply doesn’t happen with LMD, although there are cases where people are making it 2-3 years with the advancements in cancer treatment. I can only hope to be one of those people, but I am well aware that depends on my luck. And even if I am, it’s just not enough time. There is NOTHING more I want than to see my babies grow up. And knowing that won’t happen is wearing on my heart and tearing me to pieces over the last several days. Many are still asking how to help and the answer is still the same. Monetary help is the most tangible way to relieve stress, help us stay caught up, and give Bronson the ability to stay with me as much as possible through this. I hate to still be in a place where this is our biggest need, but for the sake of transparency, it is. Besides that, yalls support and love have carried us more than you know. Going through this is scary, but not being alone and having so many people who care DOES make this less painful. Watching my family truly learn how kind people can be has been a part of this I wouldn’t trade. It hurts knowing your time is limited. But I will be okay, I’ll keep loving on my family, and when the time does come, I know I will leave here as someone who truly knew love and that matters the absolute mos
